Sweper is a national initiative aimed at improving and supporting opportunities for the life science sector in Sweden to obtain and use data. Many of these solutions will be able to contribute to what we call precision medicine – but also to precision health.The project is ended.
The amount of data on each individual is growing fast. This includes information provided by the patient during healthcare consultations – for example, all the data obtainable from an ordinary blood sample – but also data produced by the individuals themselves, through health apps for example. All data on the individual which is significant to well-being can be considered systematic health data.
Used correctly, the available systematic health data could contribute to providing us with healthcare that is specially adapted to each and every one of us, known as precision medicine. Individuals would also be able to use this data themselves for precision health.
However, the work of public healthcare and regulatory authorities has not kept up, which means that we cannot fully exploit our systematic health data. This is what the Sweper project wants to change.
How Sweper works
Together with patients’ associations, business and academia, the Swelife project highlights what needs to be done for Swedish health data to become the support required to gain maximum benefit from the potential within precision medicine. In addition, the project produces guidelines and implements concrete projects to demonstrate opportunities. In order to implement the results in the long term, the project identifies and gains support from suitable recipients of these results.
The aim of Sweper
The aim of the entire project is to enable the use of systematic health data in an efficient and unified way, to create innovative solutions for better health which are nationally and internationally scalable. Public healthcare, together with business and academia, are to be able to benefit from health data while preserving patient integrity. This could put Sweden back in the lead for the development of life science.
Parties from public administration, academia, public healthcare and industry collaborate in the project.
Support from Swelife
SEK 20 808 000.
Work package 1: Project management
Work package 2: Law
Examined legal obstacles in the field of health data.
Work package 3: Competitive neutrality
The work package creates a guide for understanding how systematic health data can help businesses and healthcare to new and innovative solutions.
Work package 4: Semantics
How should health data be described so that it becomes useful in the digitization of processes? It is examining this subproject.
With common terms, concepts, and coding, different computer systems can “talk” to each other all over Sweden – and the world. A common computer language can create more efficient processes and new business opportunities.
The work in the project is based on the terms of the healthcare profession and is run by clinically active people in each area.
The project aims to promote the development and use of standardized and structured electronic response templates in cancer diagnostics.
The project’s goal is to create conditions for better reuse of patient information by creating processes for long-term sustainable development and management of the information structure. Standardization has great potential to
reduce duplication of work when registering information for patient care (documentation, referrals, etc.) and for follow-up
increase the usefulness of the information for quality registers, decision support and research.
Standardization of structural definitions in radiation therapy
The project is carried out by representatives from the national quality register group in radiation treatment. It is based on previously successful standardization initiatives regarding nomenclature and data management in the area – where Sweden has become the first and only country in the world to implement a national nomenclature for radiation treatment.
In order to harmonize the underlying data format, the country’s collective radiation oncology expertise is now being engaged. The task is to reach a consensus on how risk organs should be defined anatomically in dose planning systems used for planning the treatment.
Within the framework of this project, a mapping will be done against accepted coding works so that the guidelines can eventually become machine-readable and further improve the conditions for
research in radiation therapy.
A pilot for precision medicine in COPD care
Precision medicine requires that structured data is captured during the care process, in order to be able to continuously extract information. The information can later be used for clinical decisions, quality work, and research.
Standards for terminology and clinical models (care plans) exist, but still, play a marginal role in care. This project wants to change that.
The project will focus on the care process for COPD patients. COPD means chronic obstructive pulmonary disease.
The goal is to improve the care of COPD patients by increasing the possibility of interprofessional communication and including the patient. The project will evaluate and validate a general scalable model to meet the needs of patients with chronic diseases. The evaluation takes place as an observational study that is carried out with the help of the developed clinical information support.
The project examines individuals’ use of self-collected health data. It identifies the benefits to individuals of the data and the driving forces behind the collection of data.
Project Manager Lars Lindsköld firstname.lastname@example.org +46-705-40 65 20